Healing Mental Health Challenges with Vulnerability & Heart with Patrick Kennedy [Episode #943]
This weekās topic:
Hello everyone and welcome back to our Monday interview show. I am so excited for our very special guest today, Patrick Kennedy, who is a New York Times bestselling author and former member of the US House of Representatives and the nationās leading political voice on mental illness, addiction and other brain diseases. During his 16 year career representing Rhode Island in Congress, he fought a national battle to end medical and societal discrimination against these illnesses, highlighted by his lead sponsorship of the Mental Health Parity and Addictions Equity Act of 2008. He has a new book out, which is incredible, called Profiles in Mental Health Courage. It goes on and on, but Iāll pause there first to welcome you onto the show, Patrick. Thank you so much for being here with us today.
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About Patrick J. Kennedy
During his time in Congress, Patrick J. Kennedy co-authored the landmark Mental Health Parity and Addiction Equity Act (Federal Parity Law), which requires insurers to cover treatment for mental health and substance use disorders no more restrictively than treatment for illnesses of the body, such as diabetes and cancer. In 2013, he founded The Kennedy Forum, a nonprofit that unites advocates, business leaders, and government agencies to advance evidence-based practices, policies, and programming in mental health and addiction. In 2015, Kennedy co-authored the New York Times Bestseller, āA Common Struggle: A Personal Journey Through the Past and Future of Mental Illness and Addiction,ā which details a bold plan for the future of mental health care in America. In 2023, The Kennedy Forum launched the Alignment for Progress, a movement to align leaders from across industry and across the aisle to achieve 90/90/90 by 2033: 90% of all individuals will be screened for mental health and substance use disorders; 90% of those screened will be able to receive evidence-based treatment; 90% of those receiving treatment will be able to manage their symptoms in recovery. Kennedyās second co-authored book āProfiles in Mental Health Courageā , available now, delves into the compelling stories of a diverse group of Americans who have struggled with their mental health ā many of whom are sharing their stories for the first time.
Kennedy is also the founder of DontDenyMe.org, an educational campaign that empowers consumers and providers to understand parity rights and connects them to essential appeals guidance and resources; co-founder of One Mind, an organization that pushes for greater global investment in brain research; co-founder of Psych Hub, the most comprehensive online learning platform on mental health, substance use, and suicide prevention topics in the world; co-chair of the National Action Alliance for Suicide Preventionās Mental Health & Suicide Prevention National Response to COVID-19 (National Response); and co-chair of the Bipartisan Policy Centerās Behavioral Health Integration Task Force.
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Guest Resources
Patrick J. Keen Books:
Profile in Mental Health Courage
A Common Struggle: A Personal Journey Through the Past and Future of Mental Illness and Addiction
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Episode Chapters
00:00 Introduction to Mental Health Advocacy
06:02 Understanding Mental Health vs. Mental Illness
12:02 The Importance of Early Intervention
17:50 The Need for a Unified Mental Health Agenda
24:03 Innovations in Mental Health Education
30:54 The Power of Personal Stories
36:45 The Role of Community in Recovery
43:45 Advocacy and Policy Change for Mental Health
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Transcript:
Kimberly Snyder (00:01.063)
Hello everyone and welcome back to our Monday interview show. I am so excited for our very special guest today, Patrick Kennedy, who is a New York Times bestselling author and former member of the US House of Representatives and the nationās leading political voice on mental illness, addiction and other brain diseases. During his 16 year career representing Rhode Island in Congress, he fought a national battle.
to end medical and societal discrimination against these illnesses, highlighted by his lead sponsorship of the Mental Health Parity and Addictions Equity Act of 2008. He has a new book out, which is incredible, called Profiles in Mental Health Courage. It goes on and on, but Iāll pause there first to welcome you onto the show, Patrick. Thank you so much for being here with us today.
Patrick Kennedy (00:54.318)
Hello, Kimberly. Itās great to be on and thank you for doing all you do to help spread the word. It means a lot.
Kimberly Snyder (01:02.331)
Sometimes, you know, in the past, sometimes when we talk about health, wellness, people would really focus on how fit their bodies were, how much they weighed. There was all these different definitions. And thankfully, thanks to leaders such as yourself, thereās so much expansion of that definition of health and wellness, really taking the mental aspect into consideration. I mean, I think even five years ago, would you agree, Patrick, 10 years ago, certainly this was something that was
hidden underneath, one of the things you talk about in the book, the courage, people speaking out because there was so much shame or confusion, people not even really understanding about these illnesses in the first place.
Patrick Kennedy (01:44.184)
Yeah, no question. And I think we had it for some time with our young people suffering. And of course, that seems to be the new big focus in our space. But COVID definitely brought it home to everybody. that was this is no longer someone elseās challenge or rather it wasnāt just the purview of those psychiatrists and the mental health world that everybody could use better mental health and needs to.
protect their own mental health and to seek better mental health themselves. itās always been glass, you know, half empty, you know, negative connotation. And now weāre starting to see the whole reframing of mental health to be something that everybody has to fight for, whether youāre a really top successful
entrepreneur, athlete, or even green beret. For example, the green berets have more mental health than any other branch of the service. And youād say, why the hell the green berets need help? They are the strongest fighters in the world. Well, frankly, itās the mental health that allows them to be special operators because of their ability to manage their own thinking, counterproductive thought patterns, andā¦
Kimberly Snyder (02:47.623)
Mmm.
Patrick Kennedy (03:08.31)
you know, intrusive thoughts, you know, the same stuff that bedevils people like me are in recovery from addiction or trying to always keep from acting on any self-destructive impulse. For the Green Berets, itās they have to have focus on their mission. And when theyāre dropped in behind enemy lines, they canāt be thinking about whatās going back on back at home. They canāt.
have anything on their mind but exactly their mission or else it could compromise the whole operation. the point being that mental health is no longer just mental illness, right? Because thatās how we thought of mental health was through mental illness. You donāt have to be mentally ill to be mentally unwell and so and vice versa.
Kimberly Snyder (03:32.805)
Right.
Kimberly Snyder (03:51.047)
right.
Kimberly Snyder (04:00.099)
Patrick, can you explain a little bit about the difference between mental health and letās say, stressed, being stressed out or, some of the things, like itās sometimes we donāt necessarily understand when help is warranted or when thereās something out of the actual norm parameters.
Patrick Kennedy (04:16.866)
Well, Iām working a lot on trying to free frame the fact that we only look at health in terms of mortality, right? Weāre thinking people are dying at this rate or, you know, cancer and so forth, heart disease. And what we miss is the lost days of life. there, my motherās a recovering alcoholic, suffered from depression, alcoholism her whole life.
Kimberly Snyder (04:25.605)
Bye.
Kimberly Snyder (04:37.415)
Mmm.
Patrick Kennedy (04:46.398)
And she really wasnāt able to fulfill her best dreams and aspirations because of the disease. Now, sheās 87. And whenever she passes, people will say, thatās a full life. She lived to 87. But, you know, Iām here to say that, no, you know, she was not able to live a full life because she was held hostage by those illnesses. And so I think itās disability.
So we all have anxiety, depression, know, various forms of addiction, process in both chemical process addictions. But how much are they intruding and interfering with our lives? Thatās the thing. Like we all have stress, we all get panicked, we all have, but how much is that really affecting our ability to live free lives, you know, with our
Kimberly Snyder (05:32.027)
Right.
Patrick Kennedy (05:45.922)
with full agency, with our ability to not have however weāre feeling dictate how we live our lives. So when it starts to impinge on our abilities, thatās when it gets into the illness, know, whatever you want to call it, itās disabling. Itās disabling. So thatās when we need help.
Kimberly Snyder (06:02.822)
Right?
Mm. So Patrick, can you share a little bit before we get into this new book about your your last book, Common Struggle, where you talked a little bit about some of your own story. You know, thereās so much around the you know, the the wounded healer or the wounded hero, we could say I know thatās why I got into wellness because I had a lot of issues in my body recovering from eating disorders. So sometimes weāre drawn to
healing and then sharing about, you know, challenges weāve had personally. Itās a really beautiful cycle. And youāve been really open about, you mentioned about your mother. Can you tell us a little bit about your own journey?
Patrick Kennedy (06:45.614)
Well, you know, I was also the sponsor of the major eating disorders legislation in Congress because that diagnosis is discriminated against more than any other by insurance companies. Yes, yes. And really, like with all other illnesses, we wait till it becomes a stage four illness before we treat it. Thatās the difference between mental illnesses and addictions versus the rest of physical health care.
Kimberly Snyder (06:51.706)
no.
Kimberly Snyder (06:58.276)
Is that true?
Patrick Kennedy (07:14.156)
The rest of physical healthcare, you try to risk someone, like do they have it in their family and so forth? And whatās peopleās predisposition? We try to, here are some potential red flags and so forth. But in mental health and addiction, we wait until youāre really ill for the most part before we try to get you help. And then of course, it costs a lot of peopleās.
time, energy, suffering, and of course, dollars. And so everything seems both expensive and it also seems like it doesnāt work. But if you started cancer treatment when at stage four, guess what? Same thing. You wouldnāt have people do as well and it would cost a lot and it wouldnāt get quite the results you want. We have to treat mental illness and addiction early on. So part of the reason with eating disorders, you know, I
grew up, I know addiction well. my own daughter, when my own daughter started suffering from eating disorders, I could spot it early. And, and because Iām a mental health advocate, Iāve got a great Rolodex of people I can call. yeah, but also because I had done this legislation, like I knew all the the experts and, and actually, because it was during COVID, we got
Kimberly Snyder (08:12.519)
Yeah.
Kimberly Snyder (08:26.747)
Lucky her.
Patrick Kennedy (08:39.596)
virtual care for her, which was terrific because they had a family model of care, which, as you know, in our space, we donāt really include the family in the treatment. And especially with an eating disorder like you need as her parents, my wife and I need to be supportive of our daughter, which means we canāt just wait till she sees some therapist a week from Thursday.
Thatās not going to be what helps her. She needs real time help throughout the day. And she needs, frankly, that virtual care where she can get that help and where you donāt have to, as I said, try to schedule something that doesnāt fit with her. You can do a lot more on the virtual side. we have virtual nutritionists, you know, and we have peer, which, you know, so we have family peers helping her parents, me and my wife.
We have her have peers. Anyway, I say that. So I grew up with both my parents suffering from addiction.
Kimberly Snyder (09:48.36)
Patrick, sorry to interject, but just to really acknowledge how incredible it is that youāre showing up for your daughter in that way and how important, thatās such an important thing if we could pause there for a moment because so many women and people in the community are suffering from eating disorders. And I say from my heart, not with blame, but just back to your book and sharing stories because over 20 years ago when I had my eating disorders, this wasnāt as talked about.
And I was bulimic and there was so much blood coming up from my ulcer, an ulcer that my co-track captain saw it, brought it to my teacher, brought it to my mother who at the time was, know, immigrating from the Philippines. She came from the Philippines, more survival mode. And her first instinct was we canāt afford this care. So youāre just going to have to get over this on your own. there was, you youāre explaining like, parents need to be involved, telehealth. There was none of that. So I was really on my
Patrick Kennedy (10:43.352)
Yeah.
Kimberly Snyder (10:46.611)
own, Patrick. And I think about, you talked about how much it impinged life for those years going into my senior year of high school, how much just trying to get through this on my own and how much I can say from personal experience, the suffering. So, you know, Iā¦
Patrick Kennedy (11:03.054)
Itās great. You know, itās such a difference because I looked up thereās this company called Equip. I mentioned it because a lot of people have eating disorders. Itās much more prevalent than anyone knows. Equip. So I knew the founder because I was we were both fighting against insurance discrimination against. Thatās how we got to know it. And then she didnāt like the fact you had to fly across the country in her own case to get help. She wanted to be getting help where she lived.
Kimberly Snyder (11:14.266)
Right.
Kimberly Snyder (11:21.113)
Yes.
Patrick Kennedy (11:32.8)
she was doing. So she founded this ironically before COVID. Then when COVID hit, obviously it took off. So I called my local, obviously I got gold health insurance here in New Jersey. I called the CEO. said, I need you to put this company in your list of referrals because I could do that. But Iām saying to myself, we all pay big premiums for our healthcare for those of us who are fortunate enough to have healthcare.
Kimberly Snyder (12:02.213)
Yeah.
Patrick Kennedy (12:03.148)
We donāt get what we pay for. Insurance companies donāt put enough treatment providers in their network to allow their subscribers to get mental health care like and as easily as they get diabetes care or some other type of physical health care. anyway, I love, thank you for the shout out. Yeah, I mean, I also was, you know, did.
know, gay marriage and LGBTQ early on, I was honored by the human rights campaign. Of course, Iāve got this picture of me and the shepherds, you know, who lost their son. And Lady Gaga was at the event, and so I got my picture, and I got the rainbow flag. Well, anyway, when you know myā¦
Kimberly Snyder (12:51.121)
We have, I love it. I love it. Just back and back to anyone whoās watching this, by the way, on YouTube, we have people that listen in Patrick and anyone whoās watching it. The more I become attuned to the heart, we talk about the heart field, we talk about people have a certain vibration. You can just feel so much compassion in your eyes. And sometimes these struggles, the things that come into our lives, we wouldnāt be doing the work weāre doing today unless we had gone through.
these challenges. I donāt think Iād be working with all the women I worked with today had I not had such an intense war with myself, with my self-esteem, with my body. So back to your heroās journey, Patrick, can you tell us again, before I interrupted about your childhood, your addictions?
Patrick Kennedy (13:36.972)
No, no. So I was just saying, you know, my daughterās also, you know, like a lot of kids thinking about her sexual identity and all this stuff. And of course, she stumbled across my stuff with, you know, both mental health. So sheās now interested, you know, what do you have mental health like, because kids are going to suffer, right. But if you can turn your own suffering into something positive for others, like youāre saying, and then of course,
Kimberly Snyder (14:02.757)
Yes.
Patrick Kennedy (14:06.154)
I never planned, you know, I never planned like, so to do anything, you know, that would affect me personally on eating or affect me on gay rights. And then of course it comes home, which only tells you that, you know, we have to kind of do things because theyāre the right thing, because you never know. And it all comes back around. So anyway, I grew up,
Kimberly Snyder (14:07.843)
Wait.
Kimberly Snyder (14:21.819)
Hmm.
Patrick Kennedy (14:33.24)
My mom suffered terribly from alcoholism. My dad as well. My dad very high functioning, very successful. I had the disease. My grandmother died of it. It wasnāt found for over a week. When youāre alcoholic, youāre active in addiction, you so isolate. And she isolated. Itās the reason no one even bothered to call or to visit her or anything else.
Kimberly Snyder (14:49.429)
Ugh.
Patrick Kennedy (15:00.022)
my boat and my motherās sister, it ran in my family deep. And then the trauma my father suffered from seeing his brothers murdered and multiple other tragedies. My brother and sister all got the disease. itās, you know, and who knows proportion of it is genetic. Itās we know this from the National Institutes of Health. Thereās a lot of genetic predisposition to mental illness and addiction.
Kimberly Snyder (15:09.973)
yeah.
Patrick Kennedy (15:29.518)
And then of course the environment, like if you were anywhere else in healthcare, you had a predisposition for cancer and youāre working in an asbestos factory, know, itās a double whammy. So, so, so I had both the environmental and the physical and, you know, so I, I was in recovery by, or in rehab, should say at 17 for cocaine addiction and,
Kimberly Snyder (15:41.69)
Right.
Patrick Kennedy (15:58.016)
And when I got out, thought, well, Iām not going to do that again. And I didnāt, I didnāt, but then I didnāt realize that addiction is addiction is addiction. So I got, I had surgery not long after I got out of rehab, like a year and a half after, and they put me on OxyContin. I mean, I had 14 hours surgery. I mean, it was serious. And so I had every excuse to get a lot of opioids. So I got, and this was when OxyContin,
Kimberly Snyder (16:07.312)
Right?
Patrick Kennedy (16:26.702)
was just coming on the scene. And I could get so many prescriptions for it. And I did. so I became addicted to OxyContin. And then I went into rehab for that. And then of course I came back, Iām feeling anxious and canāt sleep. And so I started taking benzodiazepines and Xanax. Well, guess what? I got addicted to that. I always drank, you know,
excessively or binge drank, but since I didnāt drink all the time, I didnāt think I was an alcoholic. Thatās great. Strange because Iām a total addict. So and then, of course, I did end up becoming full blown alcoholic after I had become and then, of course, I started taking Adderall to help me focus more because I was so, you know, confused with my alcoholism. And so the point Iām making is that
Itās addiction, addiction, addiction. And now we know thereās process addictions. Thereās gambling addiction, internet addiction, pornography addiction, eating addiction, shopping addiction. So we really havenāt gotten the literacy around understanding this. I remember Matt Lauer.
Kimberly Snyder (17:32.519)
Mmm.
Kimberly Snyder (17:37.529)
Even shopping?
Patrick Kennedy (17:50.926)
was on NBC when they were interviewing me after I had a DWI. Well, did you have, you know, these drinks, they were trying to do a postmortem on the night before I got a DWI. Did you stop at this bar? Did you stop at this bar? And of course, I had had total blackout because I was taking Ambien. And I was taking Ambien because I was already detoxed from
Oxycontin, but now I couldnāt sleep because I was so used to massive quantities of the oxycontin and the cycle. And so to help me get to sleep, I thought to myself, well, Amiens not so bad. Itās just. And then, of course, I drive into the U.S. Capitol at three in the morning thinking I have a vote. and so, you know, we all these stories. But the good news for me is that all of this
Kimberly Snyder (18:25.359)
itās a whole cycle.
Kimberly Snyder (18:34.34)
my gosh.
Patrick Kennedy (18:49.582)
chronic disease of addiction forced me out of Congress. And when I left, I felt like my life was over. I didnāt have a big job. I didnāt have a big title. I didnāt have any staff. didnāt know what to do with myself. But all I did was go to 12-step recovery. And I did that nonstop. And early in my life, started coming back. And all the time, yeah, just came from a meeting.
Kimberly Snyder (19:11.111)
Mmm.
Do you still do it? Do you still go to the meetings?
Patrick Kennedy (19:19.354)
And I want people to know who are in recovery. Itās not a violation of the 11th tradition to say weāre in recovery when we go to 12-step meetings. Whatās a violation is to say what type of 12-step group youāre in. so the way, and I think itās important for your listeners, because Iām sure a lot of them are also in recovery.
Kimberly Snyder (19:19.459)
Amazing.
Kimberly Snyder (19:27.015)
Right.
Patrick Kennedy (19:44.354)
that we have to have a political movement in this country to get the changes in our public policy that we need. And when I was running for Congress, I never had any ideas which family suffered from depression, anxiety, who lost loved ones to suicide or overdose, who is the depression bipolar. I didnāt even have lists of professions. I didnāt have the psychiatrist list. Itās like, just so I would know who might vote for me. Because at the time I wasā¦
fighting to pass this mental health parody and addiction act. And, you know, I just, couldnāt reach out. Like Iām also pro-environment, Iām pro-labor, all the rest, pro-gay rights, but I know all those lists. I have, if Iām running for office, I know who I need to make happy with me to get their votes. But in mental health and addiction, we donāt have the listserv, so to speak.
Kimberly Snyder (20:14.789)
Mmm.
Kimberly Snyder (20:27.951)
Right.
Patrick Kennedy (20:41.579)
which gives anyone running for office a real sense of how many people in their prospective constituency care about this issue. So thatās what Iām really about. And as you mentioned with my book, at the end of my book, I have a QR code for people to log on to, get, you know, a sense of our alignment for progress. Cause the other thing we donāt have, Kim
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